Medical Update

I did go see my doc on Monday, as planned, and got my questions answered about the other things I went for.  Dayne was supposed to come with me to help support my claim that I needed more medical help than she was giving me.  Unfortunately, he forgot to ask the sitter if we could drop Colt off early that day (appt was at 0800) so when the time came his best idea was to bring Colt with us.  I didn’t want to disrupt the morning that much on him, plus, I didn’t think it appropriate or wise to have my autistic 11-year-old son in the room while I begged for help from my doctor.  So I went alone.

Things turned out better than usual.  She was apologetic about misleading me on the sleep study but said that she really wanted the specialists opinion based on a full consultation and then the study.  I told her I had no problem with having the consult, just that I didn’t think I’d make it another year like this with no relief in sight.  This is where I decided to take a different pathway, which ended up working.  I told her, flat out, that I wasn’t drug seeking (she adamantly interjected that she never, once thought that of me), that I had proven to be responsible with the narcotics (even reducing them when I felt I could) and that I had tried every medication she had asked me to for at least a month at a time to ensure the results I was getting were leveled out.  I started with Tylenol 3’s and went very slowly up from there to the drugs I have to take now.  I don’t use any street drugs and have urine tests to prove it as often as she asks me to and I don’t drink a lot of alcohol.  I changed my diet to a more plant based, healthy one and etc etc etc….I wasn’t discarding her advice and came in for regular follow ups.  She agreed in full….then I asked her, if she agreed, why she was not willing to prescribe a low dose stimulant to see if it helped?  Even just until the diagnostic testing was done?

“Well…I didn’t want it to interfere with the study” she said.

“….the appointment was a year away when I first asked for help…?”  I answered.

And that was that.  She wrote me a scrip for a small dose of a stimulant and gave me a three month supply.

…  Okay then.

I filled it yesterday after looking up side effects and contraindications and, satisfied that what I was doing would be safe, I took my first dose yesterday.  It didn’t do much but I did end up feeling much more awake and didn’t actually go to sleep until 8:00 ish last night.  Maybe it was even a bit later because I remember Colt going to bed.  I was worried I wouldn’t sleep well since I took it later in the day than recommended but I was fine.  Woke up every hour or so in pain and had to roll over but, aside from the usual dreams, I work up pretty well rested.  I took another at 10 this morning and again, it seems to be pushing the exhaustion back a bit.  I’m still a bit sleepy in pockets that seem to come and go rather than just sitting there on top of me for hours on end.  All positive so far.

I figure that by next week I’ll have a good sense of how it makes me feel and if it’s helping or not.  My doc said she’d raise the dose if it wasn’t helping enough.  She suggested not taking my pain killer or muscle relaxer for a day or two over the weekend to see the difference in how I feel, just in case they are contributing to the sleepiness.  I’m interested to see how that goes.

So…counting down to 40.  This is the last week….only four more days of my 30’s.  I think I’ll make it.  🙂


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About Grainne

My name is Grainne. This blog has been with me for years now and has served as a journal, a confessional, an outlet and a place for me to create and express my love of life. Thank you for stopping by and for becoming a part of this life long journey of mine. I appreciate every single one of you who takes the time to do so. :)

9 responses to “Medical Update”

  1. Birdie says :

    I am so glad that she listened to you and actually did something about it. And I am proud of you for making yourself heard. xo

  2. amazingtechnicolorbutterfly says :

    It sounds difficult. I wish healthcare wasn’t so complicated. I’m trying to figure out the blogs here. I was messaging with you about Hope last year.

    • Grainne says :

      Ooh hi! Any friend of hers always has an place in my heart. I miss her so much I can’t even articulate it. I write her email all the time and wish I could send them .. Still have our last text message on my phone. Glad you and I can reconnect here. If you have any questions let me know, I’ve been on WordPress for quite a few years now.

      • amazingtechnicolorbutterfly says :

        Don’t send her anything! I think I might still have your email. I have another friend who died of an asthma attack and I sometimes email her just to feel like i’m talking to her. I still have Hope’s phone number, i can’t bring myself to delete it. I need to find your email to explain more. It will come from either this butterfly account or the alpaca one I think I used before.

      • Grainne says :

        I just emailed you a reply from our first email connection so you will have my address handy.

  3. The Sound of Ed's Voice says :

    Definitely a good sign of results so far!! Next week will definitely be a good indicator for sure once it’s in your system more consistently!!

    And yay birthday countdown!!!!

  4. sleeplydreaming says :

    Grainne – OF COURSE we’re the same age! I should’ve guessed. 🙂 I’m so proud of you for stating your case, calmly getting to the heart of the matter and doing what it took to get stuff done. I cannot WAIT to hear how things are going. Stimulants changed EVERYTHING for me.

    • Grainne says :

      Ha! Amazing and totally not surprised on this end either. So much in common. I was reading your last post earlier … I’m glad you’re working through things. You’re so strong, even when you’re feeling weak. :). Will talk more soon, you and I. Xx

  5. littlevoicetalks says :

    It ain’t bad our kid. I’m counting down to 41 and actually I prefer being 40 to being 30 for sure. Xx

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