I did go see my doc on Monday, as planned, and got my questions answered about the other things I went for. Dayne was supposed to come with me to help support my claim that I needed more medical help than she was giving me. Unfortunately, he forgot to ask the sitter if we could drop Colt off early that day (appt was at 0800) so when the time came his best idea was to bring Colt with us. I didn’t want to disrupt the morning that much on him, plus, I didn’t think it appropriate or wise to have my autistic 11-year-old son in the room while I begged for help from my doctor. So I went alone.
Things turned out better than usual. She was apologetic about misleading me on the sleep study but said that she really wanted the specialists opinion based on a full consultation and then the study. I told her I had no problem with having the consult, just that I didn’t think I’d make it another year like this with no relief in sight. This is where I decided to take a different pathway, which ended up working. I told her, flat out, that I wasn’t drug seeking (she adamantly interjected that she never, once thought that of me), that I had proven to be responsible with the narcotics (even reducing them when I felt I could) and that I had tried every medication she had asked me to for at least a month at a time to ensure the results I was getting were leveled out. I started with Tylenol 3’s and went very slowly up from there to the drugs I have to take now. I don’t use any street drugs and have urine tests to prove it as often as she asks me to and I don’t drink a lot of alcohol. I changed my diet to a more plant based, healthy one and etc etc etc….I wasn’t discarding her advice and came in for regular follow ups. She agreed in full….then I asked her, if she agreed, why she was not willing to prescribe a low dose stimulant to see if it helped? Even just until the diagnostic testing was done?
“Well…I didn’t want it to interfere with the study” she said.
“….the appointment was a year away when I first asked for help…?” I answered.
And that was that. She wrote me a scrip for a small dose of a stimulant and gave me a three month supply.
… Okay then.
I filled it yesterday after looking up side effects and contraindications and, satisfied that what I was doing would be safe, I took my first dose yesterday. It didn’t do much but I did end up feeling much more awake and didn’t actually go to sleep until 8:00 ish last night. Maybe it was even a bit later because I remember Colt going to bed. I was worried I wouldn’t sleep well since I took it later in the day than recommended but I was fine. Woke up every hour or so in pain and had to roll over but, aside from the usual dreams, I work up pretty well rested. I took another at 10 this morning and again, it seems to be pushing the exhaustion back a bit. I’m still a bit sleepy in pockets that seem to come and go rather than just sitting there on top of me for hours on end. All positive so far.
I figure that by next week I’ll have a good sense of how it makes me feel and if it’s helping or not. My doc said she’d raise the dose if it wasn’t helping enough. She suggested not taking my pain killer or muscle relaxer for a day or two over the weekend to see the difference in how I feel, just in case they are contributing to the sleepiness. I’m interested to see how that goes.
So…counting down to 40. This is the last week….only four more days of my 30’s. I think I’ll make it. 🙂