Oh for crying out loud. I just got back from my doctor’s office. I needed to get some scrips rewritten because they are for much more medication than I actually take (I was hoarding the spares for a few months in fear that I’ll run out and then need them sometime). The pharmacist here at work asked me what was up since I am only filling a one month prescription of narcotics every three months or so….better to be transparent in these things, especially since I work here.
My GP took some time to investigate between my last appointment and this morning and did a full on chart review for the last 20 years of notes (she’s been my doc that long? Woah…) She pulled out all of the instances where sleep,(insomnia, dreams, sleepwalking/talking, sleep paralysis, hyper-somnolence, excessive exhaustion) issues have come up over the years. I had a sleep study done when in my early 20’s for issues similar to what I’m experiencing now and, in that report, they suggested a particular diagnosis that she didn’t agree with back then. With all the rest of the info, however, she’s reconsidered. She’s diagnosed me with Nacrolepsy.
I have a sleep study scheduled for December of this year so they will be able to confirm her diagnosis after the results are back in. She added a lumbar puncture to determine my hypocretin levels (most common to find a low level of this in patients who experience cataplexy which is the one symptom I don’t seem to have a lot of instances of…) I’ve already had two spinal taps in the last decade…I was hoping we could not do any more for a while.
In the end, the only thing they can do is try to keep me awake through the day with stimulants. Not so great with the anxiety and all but, will have to see what they decide to do with me before worrying about that. For now, I’m reintroducing coffee into my diet again on a regular basis even though it doesn’t seem to help much. Maybe I just need to drink a lot more. I used to drink up to 6 large coffees a day. (Same reasons, just didn’t know why I was so tired all the time).
Not sure how to feel about all of this. My doc is calling the sleep clinic to see if they can see me earlier than December. I’m going to ask to be added to their wait list, but it’s not going to be easy to accommodate a list minute over-night appointment. Will pay it by ear, as usual.